Spasticity

As your muscles fully wake up from paralysis, you’ll start to get super tight muscles pulling in. This is because your brain is confused on exactly how & where to send the signal to pull the muscle in, it is trying to hold together your muscles as it always has but is doing a very poor job of managing how tightly to pull in. All of your paralyzed muscles can struggle with spasticity/tone.

Medication

There are medications for spasticity, they don’t always work for everyone. Some survivors report success with these medications

Botox

Spasticity is frequently treated with Botox shots in your muscles that are trying too hard to pull in. Botox is a great treatment but there are some downsides to be aware of:

1. Risk of botulism: Poorly applied injections of Botox can cause a medical condition called botulism. It is very important to go to the best hospital & doctor for your injections, botulism is entirely injector error, (too much, incorrect muscles, or expired Botox)

2. Pain: the shots can be very painful, your injector should use cold spray to slightly numb your skin right before injecting. If they aren’t numbing you, you might be at an unsafe injector, so we recommend finding a different provider.

Streching

To manage the spasticity some survivors keep up a daily routine of streching, using Lebert Strech Straps

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Megan AVM Survivor

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